Monday, May 28, 2012

May 28th - New PCR results

I'm actually a little behind, I never did post my PCR results from back in February. The PCR test takes place every time I am down at OHSU, or 4 times a year.

The tests in February were somewhat of a small shocker. While my PCR was weak positive (same as before), and FISH was clean, my cytogenetics which hasn't had evidence of CML since 3 months into the trial, suddenly showed 1 CML cell out of 20. Given the sample size, it's quite shocking statistically to have such a small sample show a CML cell. Both my previous and current doctor assured me it was a fluke, since the other two tests were not consistant, but the emotional side of me struggled with what it could mean. So, fast forward, the PCR test in May had some added significance, since it would show if there really was more active leukemia, or the fact that it was a fluke.

The May PCR was released during the automatic release process in the middle of the night. I woke up very early for some reason, and by routine this time of the year, I checked my email on my phone. And sure enough, there was a message that there were test results waiting for me at the OHSU site......

Some day I will take my blood pressure during the keystrokes of going to OHSU.EDU, and finding the test results. Nerve wrecking is an understatement. By habit, I know exactly where on the test to look, and luckily the numbers or words that I want to see, are in the first few lines....And there they were, the results were UNDETECT. A huge relief obviously, it confirms that May was a fluke, and even more importantly it dropped from last time. How much is almost impossible to know, since I am under the threshold of the test. For now, I am going to cheerish those results, especially in light of an upcoming vacation that I have been looking forward to for some time now.


  1. Oh boy, Hans - what a tense wait that must have been! My blood pressure was climbing just reading about it..... I am really glad that the May test is even better than the previous one.
    I hope your vacation was just wonderful.
    love and light

  2. Hi Hans,

    I apologize for posting this on your blog, I just didn’t know how else to contact you! My name is Linda and I’m the production assistant for an online health community called WEGO Health ( I came across your blog, My Journey with CML, while doing some research into the online Blood Cancer community. I was so impressed with the great resource you have created for the greater Blood Cancer community.

    Just wanted to drop you a quick note because we recently launched a new video platform called and are in the process of building a Blood Cancer Channel featuring the advice, information and wisdom of Health Activists like yourself. I think you would be an excellent addition to the channel and I would love to chat with you about possibly creating a video with us!

    Please check out our site; and get back to me at your convenience if you have any interest.

    I know this note is a little out of the blue and I understand if it’s not something you would be interested in, but I didn’t want you to miss out on the opportunity.


    Production Assistant
    WEGO Health